Guidance for health professionals supporting groups with specific complex needs who are or have been shielding

This document is aimed at psychologists and other health professionals supporting adults who are or have been subject to shielding, who have additional complex needs or considerations, including adults with learning/intellectual disabilities, autism spectrum conditions, and/or those living with dementia | The British Psychological Society

The considerations may also be relevant for those living with long term health conditions and their families. People living with these conditions often live with hidden disabilities and the difficulties they face can consequently be less obvious to services and society due to Covid-19.

The guidance specifically focusses on those in the ‘high’ risk category defined by the UK government but recognises that many people not officially in the ‘high risk’ category may have been shielding and therefore may face similar challenges, especially those shielding others, or those in ‘moderate risk’ categories.

Full guidance: Guidance for health professionals supporting groups with specific complex needs who are or have been shielding

Prevalence, management, and outcomes of SARS-CoV-2 infections in older people and those with dementia in mental health wards in London, UK

The Lancet Psychiatry | 5th October 2020

People living in group situations or with dementia are more vulnerable to infection with severe acute respiratory syndrome coronavirus 2 (SARS-CoV-2). Older people and those with multimorbidity have higher mortality if they become infected than the general population. However, no systematic study exists of COVID-19-related outcomes in older inpatients in psychiatric units, who comprise people from these high-risk groups.

The authors aimed to describe the period prevalence, demographics, symptoms (and asymptomatic cases), management, and survival outcomes of COVID-19 in the older inpatient psychiatric population and people with young-onset dementia in five National Health Service Trusts in London, UK, from March 1 to April 30, 2020.

The study found that patients in psychiatric inpatient settings who were admitted without known SARS-CoV-2 infection had a high risk of infection with SARS-CoV-2 compared with those in the community and had a higher proportion of deaths from COVID-19 than in the community.

Implementation of the long-standing policy of parity of esteem for mental health and planning for future COVID-19 waves in psychiatric hospitals is urgent.

Full paper: Prevalence, management, and outcomes of SARS-CoV-2 infections in older people and those with dementia in mental health wards in London, UK: a retrospective observational study

Safeguarding adults with dementia during the COVID-19 crisis

This quick guide aims to support care providers and staff to safeguard people with dementia during the crisis | Social Care Institute for Excellence

There are increased concerns that, during the COVID-19 crisis, people may be more vulnerable to abuse or neglect. This may be a result of:

Full detail at Social Care Institute for Excellence

Dementia in care homes and COVID-19

Dementia in care homes and COVID-19 | Social Care Institute for Excellence 

This is a quick guide for carers in care homes supporting residents living with dementia during the coronavirus (COVID-19) pandemic. It discusses four clinical situations that may help to illustrate some challenges: understanding signs of COVID-19; helping residents with confusion; managing behavioural challenges; supporting residents with end-of-life care.

Full resource: Dementia in care homes and COVID-19

Supporting older people and people living with Dementia during self-isolation

Supporting older people and people living with Dementia during self-isolation | British Psychological Society | Division of Clinical Psychology

Older people and those with dementia are likely to be some of the hardest hit by the current crisis, being most at risk of severe disease if they contract the virus and in many cases advised to stringently self-isolate for the foreseeable future.

This guidance for older people includes advice on remaining connected and staying active during the pandemic, and a section on the needs of people living with dementia and memory problems — particularly on how to help them understand and follow Covid-19 advice.

Full document available at British Psychological Society



COVID-19: End of life care and dementia

This brief guidance was developed by Alistair Burns, National Clinical Director for Dementia at NHS England/Improvement, and has been incorporated into NHS England publications | via British Geriatrics Society

The majority of people with dementia (which is the leading cause of death in England and Wales) are aged over 70, have other long-term conditions and are frail, putting them into particularly vulnerable groups for developing complications if they are infected with COVID-19.

There are an estimated 675,000 people with dementia in England who are supported by a similar number of carers, most of whom are older people themselves. A quarter of people in acute hospitals and three quarters of residents of care homes have dementia.

This brief guidance may be useful to clinicians and planners when considering end of life care matters in people with dementia.

COVID-19: End of life care and dementia: Good practice guide.

Updated Coronavirus information for families looking after someone with dementia

Dementia UK are constantly updating the coronavirus hub on their website. Visit it to read the latest advice from dementia specialist Admiral Nurses, including the list of frequently asked questions coming through to the Dementia UK Helpline.

Coronavirus: advice for families looking after someone with dementia
The current government advice is for everyone over age 70 or with other health conditions to stay at home for up to 16 weeks. This does not specifically include people with dementia; but if the person you care for has other health considerations, or is in any way vulnerable, you might decide to follow this advice.  Full detail here

Coronavirus: questions and answers
Dementia UK have put together a list of commonly asked questions totheir Helpline, which will be updated as and when the situation develops. Full detail here

Leaflets and information
Information, blogs and ideas for people living with dementia during this time. Full detail here