Developing dementia-friendly care and support for people with a learning disability

A report from several voluntary sector organisations calls for an improvement in the way that the needs of people with learning disabilities and dementia are addressed | VODG

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Image source: VODG

This paper explores how best to develop support, services and treatments for the growing number of people with a learning disability and dementia. It builds on earlier work, across the voluntary sector strategic partnership which focuses on dementia support within the context of the protected characteristics defined under the Equality Act 2010.

Read the full report here

Commissioning for Value mental health and dementia packs

NHS RightCare has published new data packs for a range of mental health and dementia services for each CCG.

NHS RightCare has published new Commissioning for Value mental health and dementia packs for each CCG. The packs contain data across a range of mental health and dementia services, and include a number of new indicators not included in previous packs. The information is intended to support discussions about mental health care in local health economies to improve the value and utilisation of resources.

 Rotherham CCG Commissioning for Value Mental health and dementia pack:

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Image source: http://www.england.nhs.uk

The impact of dementia-friendly ward environments on the provision of care

Brooke, J  & Semlyen, J. Exploring the impact of dementia-friendly ward environments on the provision of care: A qualitative thematic analysis | Dementiapublished online: January 19, 2017

Dementia-friendly wards are recent developments to improve care for patients with dementia in acute hospitals. This qualitative study used focus groups to understand the impact of dementia friendly ward environments on nurses experiences of caring for acutely unwell patients with dementia.

Qualified nurses and health care assistants working in an acute NHS Trust in England discussed their perceptions and experiences of working in a dementia-friendly ward environment. Four themes developed from the thematic analysis:

  • (1) ‘It doesn’t look like a hospital’: A changed environment,
  • (2) ‘More options to provide person-centred care’: No one size fits all,
  • (3) ‘Before you could not see the patients’: A constant nurse presence and
  • (4) ‘The ward remains the same’: Resistance to change.

Recommendations and implementations for practice are discussed.

Read the full paper at Sage Journals

Measuring younger onset dementia:the ‘lived experience’ for patients and caregivers

Spreadbury, J H & Kipps, C. Measuring younger onset dementia: What the qualitative literature reveals about the ‘lived experience’ for patients and caregivers.  | Dementia. | Published online: January 23, 2017

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The qualitative research on young onset dementia is providing insights about the ‘lived experience’ of patients and caregivers. However, findings from these studies have seldom been integrated into descriptive overviews. Our aim was to search the qualitative research, to integrate the qualitative findings, and offer an account of the lived experience for patients and caregivers.

 

The search of the qualitative research formed part of a broader comprehensive literature search investigating salient measurement issues in the young onset dementia psychosocial research. Five electronic databases were searched (Medline, CINAHL, PsycINFO, Embase, the Cochrane Library) plus supplementary searching of reference sections and use of online search engines. We identified 23 qualitative articles.

 

In the pre-diagnostic period, patients experience changes in cognition and functioning but may be uncertain about changes and their significance. Caregivers may observe changes, think of explanations, and are important in instigating medical intervention. Obtaining a diagnosis may be a demanding process and the possibility of dementia may not be anticipated. In the post-diagnostic period, patients and caregivers use several strategies to cope and adjust. Patients can withdraw from established responsibilities while caregivers assume compensatory roles/duties. Patients perceive changes in their identity while caregivers perceive changes in the caregiver–patient relationship. Both can experience grief, isolation, and stigma.

 

The diagnosis of dementia elicits significant changes in thinking, emotion, and lifestyle that patients and caregivers are unlikely to be ready for. Both receive insufficient support or guidance in particular of a psychological nature on how to cope and adjust.

Redesigning a Memory Service the Devon way

NHS England’s National Clinical Director for Dementia and a Devon-based consultant psychiatrist review impressive changes to dementia diagnosis and care in the West Country | NHS England

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A pan-Devon partnership project group was established in October 2012 with a number of local partners of whom Devon Partnership NHS Trust was the lead.

Following a review, including patient and carer experiences, four objectives were formed. First, there should be a fully integrated person-centred care pathway. Second, that early diagnosis should be made by a specialist memory clinic, with a clear referral pathway and a person-centred, ‘One Stop’ approach. Third, all GPs should be made able to make a diagnosis in the moderate to later stages of the illness. Fourth, that all patients should have consistent access to evidenced-based interventions wherever they were diagnosed

The redesign process was at all times in consultation with patients and carers, GPs, the voluntary sector and with reference to best practice. Project groups of clinicians from each organisation and locality were set up to design and deliver the new integrated service which was implemented across Devon nine months later.

Read the full news story here

Dementia services

Healthwatch has published Dementia services: findings from the Healthwatch network.

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This briefing summarises findings from fourteen reports on dementia and numerous visits to care homes by local Healthwatch.  It finds that people want to see improvements in: information for improving dementia awareness; making sure people with dementia and their carers have the support they need; and making the environment more dementia-friendly.

Full report: Dementia services – findings from the Healthwatch network

Additional link: Healthwatch press release

Healthcare organisation and delivery for people with dementia and comorbidity

Bunn, F. et al. BMJ Open. Published online 18 January 2017

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Objectives: People living with dementia (PLWD) have a high prevalence of comorbidty. The aim of this study was to explore the impact of dementia on access to non-dementia services and identify ways of improving service delivery for this population.

 

Conclusions: This study suggests that, in order to improve access and continuity for PLWD and comorbidity, a significant change in the organisation of care is required which involves: coproduction of care where professionals, PLWD and family carers work in partnership; recognition of the way a patient’s diagnosis of dementia affects the management of other long-term conditions; flexibility in services to ensure they are sensitive to the changing needs of PLWD and their family carers over time; and improved collaboration across specialities and organisations. Research is needed to develop interventions that support partnership working and tailoring of care for PLWD and comorbidity.

Read the full article here