Dementia, rights, and the social model of disability

mhfThis paper describes the social model of disability in relation to dementia, as well as national and international law that is informed by it or that it connects with. It goes on to describe tools that can be used to apply the model through policy, practice, service and community development.

Using the social model of disability has implications for the rights of people with dementia under the law, for disability discourse and public policy, and for how dementia is experienced and perceived by people with dementia and their carers, as well as how it is viewed and discussed in public.

via Dementia, rights, and the social model of disability.

Advance care planning for people with dementia living in long-term care settings

This paper provides an overview of the evidence on the perspective of health care professionals (HCPs) in relation to advance care planning (ACP) for people with dementia, residing in long-term care settings. A narrative approach was adopted to provide a comprehensive synthesis of previously published literature in the area. A systematic literature search identified 14 papers for inclusion. Following review of the studies four themes were identified for discussion; Early integration and planning for palliative care in dementia; HCPs ethical and moral concerns regarding ACP; Communication challenges when interacting with the person with dementia and their families and HCPs need for education and training. Despite evidence, that HCPs recognise the potential benefits of ACP, they struggle with its implementation in this setting. Greater understanding of dementia and the concept of ACP is required to improve consistency in practice. Synthesising the existing evidence will allow for further understanding of the key issues, potentially resulting in improved implementation in practice.

Full reference: Esther-Ruth Beck. Health care professionals’ perspectives of advance care planning for people with dementia living in long-term care settings: A narrative review of the literature. Dementia. Published online before print September 16

Dementia from the inside

Social Care Institute for Excellence

A new SCIE film takes an innovative approach to what it might feel like to live with dementia. It features the voice of a woman who has the condition, and the viewer gets a view of life from her perspective. http://bit.ly/1GoKAgH

People with dementia:

May interpret things that happen differently to those around them
May have unanticipated periods of lucidity and periods of confusion alike
May sometimes not recognise people or places they know well
May become frustrated with themselves or those who struggle to understand them
May not be able to articulate or communicate their anxieties, fears or frustrations
Live with unpredictability, such as the passage of time
What is the video about?

In this film we find out what it might feel like to live with dementia. Viewers will experience a little of what it is like to find yourself in a world that seems familiar and yet doesn’t always make sense. The incidents pictured in this film and memories recounted are based upon true experiences gathered from people living with dementia

via Dementia from the inside – YouTube.

Prudent diet may attenuate the adverse effects of Western diet on cognitive decline

Alzheimer’s & Dementia: DOI: http://dx.doi.org/10.1016/j.jalz.2015.08.002

prudent diet

Background
The influence of mixed dietary patterns on cognitive changes is unknown.

Methods
A total of 2223 dementia-free participants aged ≥60 were followed up for 6 years to examine the impact of dietary patterns on cognitive decline. Mini-mental state examination (MMSE) was administrated. Diet was assessed by a food frequency questionnaire. By factor analysis, Western and prudent dietary patterns emerged. Mixed-effect models for longitudinal data with repeated measurements were used.

Results
Compared with the lowest adherence to each pattern, the highest adherence to prudent pattern was related to less MMSE decline (β = 0.106, P = .011), whereas the highest adherence to Western pattern was associated with more MMSE decline (β = −0.156, P < .001). The decline associated with Western diet was attenuated when accompanied by high adherence to prudent pattern.

Conclusion
High adherence to prudent diet may diminish the adverse effects of high adherence to Western diet on cognitive decline.

via Prudent diet may attenuate the adverse effects of Western diet on cognitive decline – Alzheimer’s & Dementia: The Journal of the Alzheimer’s Association.

Dementia-friendly initiatives

JRF

The Joseph Rowntree Foundation has published the following documents relating to dementia:

How can we make our cities dementia friendly? Sharing the learning from Bradford and York – draws out the key messages from independent evaluations of the Dementia Friendly Communities programmes in York and Bradford.

Evaluation of the Bradford Dementia Friendly Community Programme – identifies the distinctive features of the Bradford Dementia Friendly Communities programme, and examines how people with dementia can influence what a Dementia Friendly Bradford should be like.

Evaluation of the York Dementia Friendly Community Programme – identifies the distinctive features of the York Dementia Friendly Communities programme, which promotes a range of innovative projects. It looks at how people with dementia have been involved in shaping the programme.


Developing a national user movement of people with dementia
– learning from the Dementia Engagement and Empowerment Project (DEEP) – describes the growth of DEEP over a three-year period (2012–2015).

On the journey to becoming a dementia friendly organisation – sharing the learning for employers and organisations – shares the learning from Joseph Rowntree Foundation’s Dementia without Walls programme

JRF

Nearly two thirds of Britons (64%) not aware exercise could help reduce risk of dementia

Almost eight in ten people (79%) are not doing the amount of average weekly exercise recommended by NHS guidelines, despite evidence that regular exercise can reduce a person’s risk of dementia.

This is according to a survey carried out by Alzheimer’s Society to mark the start of Memory Walks on Saturday.

Research shows that taking regular exercise is one of the best things that can be done to reduce the risk of getting dementia, yet 64% of people surveyed (67% men, 62% women) didn’t know that regular exercise and physical activity could reduce the risk of people developing dementia.

More from the Alzheimers Society here