What are the barriers to care integration for those at the advanced stages of dementia living in care homes in the UK?

Kupeli, N. et al. Dementia. Published online: March 1st 2016,

B0003937 Illustration depicting memory
Image source: Matthew Herring – Wellcome Images

People with advanced dementia are frequently bed-bound, doubly incontinent and able to speak only a few words. Many reside in care homes and may often have complex needs requiring efficient and timely response by knowledgeable and compassionate staff.

The aim of this study is to improve our understanding of health care professionals’ attitudes and knowledge of the barriers to integrated care for people with advanced dementia. In-depth, interactive interviews were conducted with 14 health care professionals including commissioners, care home managers, nurses and health care assistants in the UK.

Barriers to care for people with advanced dementia are influenced by governmental and societal factors which contribute to challenging environments in care homes, poor morale amongst care staff and a fragmentation of health and social care at the end of life. Quality of care for people with dementia as they approach death may be improved by developing collaborative networks to foster improved relationships between health and social care services.

Read the abstract here

Full document available here

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